Background
The occurrence of acute rheumatic fever (ARF) and it’s complication rheumatic heart disease (RHD) declined sharply in many high-income countries since the 1960s. In New Zealand, ethnic inequities are striking, with Māori and Pasifika children experiencing among the highest ARF rates in the world. We investigated outcomes for patients hospitalised with an initial occurrence of ARF. Secondly, we investigated what proportion of people aged <40 years-old who were hospitalised for the first time with RHD had been previously hospitalised with ARF.
Methods
Data from the National Minimum Dataset and the National Mortality Collection were obtained. We included patients born after 1983 who were hospitalised with initial ARF during 1989–2012. ARF progression outcome data (recurrent ARF hospitalisation, RHD hospitalisation, death from circulatory causes) during 1989–2015 were linked to the initial ARF hospitalisation.
A retrospective analysis identified initial RHD patients <40 years of age hospitalised during 2010–2015 and any preceding hospitalisation(s) for ARF.
Results
Most (86.4%) of 2,182 initial ARF patients did not experience disease progression by 31/12/2015. The probability of progression after 26.8 years of theoretical follow-up was 24.0%; the probability of death was 1.0%. Progression was more rapid and around 2-times more likely for Māori and Pasifika patients. Of 435 initial RHD patients, 82.2% had not been previously hospitalised for ARF.
Conclusions
This young cohort demonstrated low mortality but considerable illness, especially among underserved Māori and Pasifika populations. A national patient register could help monitor and reduce ARF progression.